Sunday, September 15, 2013


Yesterday was an awesome day for all of us. Alexis got her vent (breathing tube) taken out, which was a huge milestone. They anticipated she would do well off the vent and so far, so good! We were hanging out around her while she was cooing and being very happy, and the volunteer photographer happened to walk by and ask what was going on. She offed to take Lexi’s picture, for free, and at that moment the nurse asked if I wanted to hold her for the pictures. I couldn’t believe it and I broke down into tears right then and there. We had expected to hold her the day after her vent came out, not the day of. So the photographer was able to get a good set of pictures with me holding her. It was amazing! *****Alexis continues to do very well this morning. Since getting her vent out she has not done a ton of sleeping, not even when being held. I guess she got enough sleep in the last few days that she was just ready to go! We had a little issues this morning with her PIC line getting pulled out, probably while passing her around. They were able to get some other iv’s put into her, which was a good thing. She seems to have a touch of reflux this morning, which could mean she is not tolerating the volume of milk going into her, or she doesn’t like all of the oral medicines that are going into her, or a combination of the two. We will keep an eye on it. ***** I have been pumping breast milk for her, which has gone well since about day 3. The first two days I was in too much pain to really be effective. The nurse just told me that I have enough milk pumped for her to last her until she is three. I doubt it, but I appreciate that he recognizes it is not all that fun or easy to keep a good supply up. Levi thinks pumping is really weird and he doesn’t quite get it, but he gets bored easily enough that he doesn’t stick around too long while I’m doing it. ***** I think all of our visitors had a chance to hold her for a little bit today. Even Levi got a chance! Please pray that she continues to do well, that she tolerates her feeds so we can try a bottle soon, and that her lungs clear out so we can turn her oxygen down some today.

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