Saturday, June 22, 2013

Another echo, same results

We had another appointment yesterday to remeasure and take more pictures of Alexis's heart. (She was not cooperating this time and it took the U/S tech a little while to get all the pictures he needed because she was making it very difficult. Our feisty little girl always kicks and punches wherever the ultrasound wand is placed on my belly and it is very weird seeing her move onthe screen and feeling it at the same time.) The doctor saw the same thing and said, in regards to HLHS, she has a less severe case. We are very pleased to hear that. We talked a lot about how to pick a hospital when the time comes and he gave us his 2 cents. WE talked about Children's Hospital Colorado (Denver), Texas Memorial Children's Hospital (Houston), Mott (Ann Arbor, MI), and Texas Children's (Dallas). He said they are all very good hospitals and should not have a problem handling Alexis because of the severity of her condition. We were hoping he would really have an opinion about one or another because we are having a hard time choosing. He said they already sent their initial report to Denver, because that is the hospital they use most often, but he would be happy to send our report to any other hospital we want him to. He also offered to call any hospital we wanted to investigate and talk to the staff there about the specific statistics for HLHS as the hospital. He was encouraging in that he said the survival rate is up to about 85% through the first two surgeries, and reiterated that we should go to a hospital that does a whole lot of these surgeries all the time. We are still very confused about where to go, because we know that God will do His will in her life, but we also want the very best care for Alexis possible. We want to make sure we pick the hospital that will give her the best care so we don't second guess our decision if something goes wrong. We want to be close to our family, too, so we have their support and they are able to be there for us as much as they want. We don't want that to be the only factor we consider though. Sigh. Not sure how we are going to make this decision other than pray that God paves the way for us! Thanks for the continued prayers.

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