The end is near!

Jason and Levi just left for Albuquerque with Jason’s parents and my dad. We are anticipating Lexi’s discharge tomorrow morning, first thing. It is very surreal thinking about taking her out of the hospital. We have been waiting for this day for 4 weeks, and even longer, but now that it’s here I find myself feeling anxious and unsure. There is nothing happening for her in the hospital that I wouldn’t be able to do for her at home, but there is a little bit of fear that something could happen. A good friend told me yesterday, “fear is not of the Lord, so don’t give in to it!” I pray about it all the time, and unfortunately I think it is just natural for parents to worry about their children. Please pray for us, that God would take our fear and anxiety away, and that we would be able to fully trust in Him for her care and safety. ***** There are so many new things that are going to happen once we get her “home.” By home, I really mean the Ronald McDonald House. My mom and I are going to stay there for a week because we have to have a couple of follow-up appointments here before we are cleared to go home. I think it will be a nice transition, though, to be close to the hospital but in our own space with her while we figure her out. I already know how to feed her and bathe her, but I still need to learn how to give her medicine and a couple of other small things. ***** There is not much else new in our world. Jason is going to try to get Levi back into some kind of routine this week, before Alexis gets there. We have been talking to the doctors a lot about how to transition back into a normal life. They said having a stream of visitors is probably not a good idea, and people that do come over have to make sure they are not sick and may or may not get to hold her. This was hard for me to hear because I want to share her with everyone, but they assured me that people will understand, especially because we are getting into cold and flu season. Part of the problem is if she gets sick, she will probably have to get admitted to the hospital, but that means being life-flighted back to Denver rather than staying in Albuquerque. Of course we don’t want her to get sick, but we definitely don’t want to have to come back to Denver before her second surgery (probably at the beginning of the year). ***** Thank you for the continued prayers and I will update as things progress.